Rewriting illness, by Elizabeth Benedict

Staff Pick

This is a deeply moving and, given the subject, surprisingly entertaining memoir about Liz Benedict’s experience with cancer, which began after she suddenly discovered a lump in her armpit late one night in 2017. Benedict brings a veteran author’s crisp style and sense of detail and description to recounting going through something she—and many of the rest of us—have feared. She also tells her story with a good deal of humor and self-awareness and succeeds in making her very personal account resonate with universal meaning.

Rewriting Illness By Elizabeth Benedict Cover Image
$21.95
ISBN: 9781942134916
Availability: In Stock—Click for Locations
Published: Mandel Vilar Press - May 23rd, 2023

The Invisible Kingdom, by Meghan O'Rourke

Staff Pick

Writer and critic Meghan O’Rourke is uniquely suited to write a testimonial about what it’s like to live with a chronic illness. In The Invisible Kingdom: Living with Chronic Illness, she recounts the onset of mysterious autoimmune disorders when she was a young woman and the misdiagnoses and imprecise treatments that followed. O’Rourke bravely takes the reader through the array of health problems that left her demoralized and incapacitated, and led to assumptions among her doctors that her illness was due to anxiety, depression, or emotional instability. Relying on her skill as a writer, O’Rourke delivers her story with a message: There are no neat solutions for her or the tens of millions of Americans suffering from auto-immune diseases that doctors routinely ignore or don’t understand. These patients must endure a health care system too specialized and frazzled to find answers to illnesses that require holistic, integrated approaches to diagnoses and treatment. It is no surprise that O’Rourke’s book was a finalist for this year’s National Book Award. Deservedly so. 

 

The Invisible Kingdom: Reimagining Chronic Illness By Meghan O'Rourke Cover Image
$28.00
ISBN: 9781594633799
Availability: Not On Our Shelves—Ships in 1-5 Days
Published: Riverhead Books - March 1st, 2022

The Invisible Kingdom, by Meghan O'Rourke

Staff Pick

O’Rourke’s exhaustive—and at times, fittingly, exhausting—memoir and cultural history examines chronic illness from every angle. She traces her own experience from the first mysterious night sweats and shooting pains in her 20s through the years of escalating and unpredictable fatigue, rashes, brain fogs, and insomnia, against the larger story of the ever-changing conceptions of what “disease” is and how to treat it. Each loop back brings her bang up against today’s rising numbers of the chronically ill and these (mostly) women’s growing demands on a health-care system ill-equipped to help, let alone heal them (not to mention those less privileged than O’Rourke, which she does, albeit in passing). Often the system, with its harried providers, fails even to hear these patients whose profiles defy the usual (male-based) checklists. Determined not to be dismissed as “inauthentic,” O’Rourke spends years seeking out specialists, procuring esoteric foods, trying experimental treatments, and obsessively charting the arc of her various conditions. At last, though test results are inconsistent, a diagnosis of chronic Lyme disease, complicated by endometriosis, Hashimoto’s disease, and POTS, among other things, opens the way to a lasting improvement in her quality of life, allowing her to regain her lost sense of inner life, mother two healthy sons, teach, write poetry and a memoir remarkable not only for its important narrative but for its visceral evocations of the land of the ill.

 

The Invisible Kingdom: Reimagining Chronic Illness By Meghan O'Rourke Cover Image
$28.00
ISBN: 9781594633799
Availability: Not On Our Shelves—Ships in 1-5 Days
Published: Riverhead Books - March 1st, 2022